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April 2008

April 30, 2008

LPGA Tour Player Sarah-Jane Kenyon Joins NFCA as Athletes for Awareness Spokeswoman

When I think about playing a round of golf, I picture sunny skies, beautiful green grass, crystal clear lakes and the occasional sand trap. I think about breathing in the fresh air and hopefully finding the perfect club to hit a hole-in-one.  I think about good times on the course with family and friends and of course, the 19th hole (aka eating and drinking after the round). 

Although it would incredible to only have these warm and fuzzy thoughts about golf, people with celiac disease have to be a little bit more careful and plan ahead.  And that’s exactly what LPGA Tour Professional Sarah-Jane Kenyon does every day before heading to the golf course.
As the new Athletes for Awareness Spokeswoman for the National Foundation for Celiac Awareness, Sarah will be sharing her story and keeping us posted of her gluten-free dining experiences while on the professional golfers tour!

Kenyon_sarahjane So, who is Sarah-Jane Kenyon???
Sarah is a native Australian and started playing golf at the young age of 12. She quickly showed promise and by age 13 she was competing in tournaments all across Australia. In 2002 she was the Australian Junior Champion and in 2003, winner of the Queensland 72-hold Championship. She finished 10th in the 2004 Australian Open and competed in the 2006 U.S. Women’s Open Championship.  Now, at 23, Sarah is competing as a member of the LPGA tour.

Pretty impressive isn’t it?! What’s even more impressive is that she manages to keep up with the rigors of the LPGA tour all while managing a gluten-free diet!

Sarah only recently began experiencing symptoms of celiac disease. Her symptoms included gastrointestinal discomfort, headaches and severe fatigue, none of which allowed her to perform at her best while on the professional golfers tour. Luckily, Sarah knew what might be happening — her mother, Sharon, has celiac disease, so when the symptoms appeared, it took no time at all to figure out the cause!

“I started feeling poorly whenever I ate ‘normal’ foods, like bread and pasta,” said Kenyon. “Since my mother has celiac, I knew right away that I might be susceptible because the disease is genetic. Since I started on a gluten-free diet, I’ve felt much better.”

With a cure to her problems in place, Sarah is speaking out to help other athletes in the United States get diagnosed and manage a successful gluten-free diet while on the go!

How does she do it?
Before Sarah knew what was causing her distress, she says she lived on Panera and Quiznos while traveling to tournaments. Now she says she has to plan ahead. She always keeps fresh fruit, vegetables and rice cakes with her on the golf course and says she is lucky that the LPGA tour organizers always keep healthy foods on hand for the players to eat.

However, Sarah was sure to say that the United States is nothing like her home country of Australia.

“In Australia, there are tons of gluten-free options! There are bakeries and restaurants and even Starbucks has gluten-free food!”

The bottom line she says, is that people in Australia truly understand the disease and in turn there are an abundance of delicious gluten-free food options.

As the Athletes for Awareness Spokeswoman, Sarah will wear the NFCA logo on her apparel and golf bag throughout the LPGA tour season and will work to promote awareness among fans and at events sponsored by the NFCA. 

Hopefully the gluten-free diet, coupled with support from the NFCA will help Sarah play even better golf!

April 09, 2008

Gluten-Free Meal Please: Triumph Dining Publishes Essential Gluten-Free Restaurant Guide

I’m finally turning 25…my car insurance is becoming $500 a year cheaper, I can rent a car without paying a hefty penalty and I think that I’m actually going to avoid a quarter-life crisis…now, all I have to do is find a restaurant to celebrate at that can make a gluten-free meal and satisfy the stomachs of my family and friends…oy vey!

As I began planning my birthday party, my immediate instinct was to go somewhere that I go all the time. Somewhere that I know is safe and can make me a gluten-free meal that will definitely not leave me with explosive diarrhea on my birthday. But then I thought about it for a few minutes and decided that this is the start of a new era of my life and with it should be new and exciting dining experiences!

My dad has a bad stomach and is on a high-fiber diet, my mom also has celiac and colitis, one of my best friends is kosher and another is allergic to citrus! AHH! What to do?

Thankfully, the latest edition (2008-2009) of the Triumph Dining Essential Gluten-Free Dining Guide arrived in my mailbox last week, as did my Gluten-Free Dining Cards. YIPPIE!

The guide provides instant access to celiac-friendly restaurants and gluten-free lists including:

  • More than 1,600 individually-owned restaurants specifically recommended by other Celiacs for their ability to accommodate the gluten-free diet.
  • More than 900 individually owned restaurants offering printed gluten-free menus, gluten-free pastas or gluten-free pizza.
  • More than 2,600 chain restaurant locations that have extensive gluten-free options.
  • 80 lists of gluten-free items provided by regional and national chain restaurants, from fast food joints to high-end steakhouses.
  • Strategies for ensuring successful and safe gluten-free restaurant dining.

Triumph_2 So, I took the book and a cup of coffee out onto my balcony and immediately flipped to the Washington, DC section. There were about 40 restaurants in this section. I also looked at the Maryland and Virginia sections, which upped my options to more than 200 restaurants in the DC-Metropolitan Area, all that are gluten-free friendly!

I read descriptions of so many restaurants and my mouth was watering! I came up with a list of three and sent copies the menus to my friends and family who would be attending dinner. After a very un-democratic vote that was whole-heartedly influenced by ME, we decided that my party would be at a Maggianos in Friendship Heights.

Now, you would think that since we picked a gluten-free friendly restaurant that the difficulty would be over…Not quite yet. Maggianos is a family-style Italian restaurant, so when you have more than 4 people, they ask that you order large portions to share…this is what is known as family-style dining.  How on earth would everyone be accommodated? Not to worry!  Triumph Dining gave me complete contact information for Maggianos, so I knew exactly whom I needed to speak with about my utterly difficult family.

Within one minute of dialing Maggianos, I was connected directly with the chef and we went over the family-style menu and he highlighted options that would work for a large party. The menu allows you to choose: 2 salads, 2 appetizers, 2 entrees, 2 pastas, 2 vegetables and dessert—all of which are bottomless, so you can refill as many times as you want!

Here’s the menu we came up with:

-Grilled Calamari with lemon butter dipping sauce
-Sliced beefsteak tomatoes, fresh mozzarella cheese; drizzled with our Italian Vinaigrette
- Chopped Salad with chopped iceberg lettuce, diced tomatoes, crumbled bleu cheese, green onion, avocado, crispy Prosciutto, tossed in our signature House Dressing.
-Maggiano's Salad with Iceberg and romaine lettuce, crumbled bleu cheese, crispy Prosciutto, red onions, tossed in our signature House Dressing.
-Rigatoni pasta, herb roasted boneless chicken, mushrooms and onions, tossed in a light Marsala cream sauce. (substitute gluten-free spiral pasta)
-Fettuccini noodles tossed with broccoli and garlic in a creamy alfredo sauce.(substitute gluten-free spiral pasta)
-A whole roast chicken marinated in fresh herbs, roasted and cut into pieces. Served in a light chicken sauce.
-Beef Medallions, Portabella Mushrooms, Garlic Mashed Potatoes.
- Broccoli sautéed with garlic and olive oil.
-Asparagus sautéed with garlic and olive oil.

Even though my menu is all set, I’m still going to take my Italian Triumph Gluten-Free Dining Card with Sidebar_cards   me to make sure that the staff working on my birthday know exactly how to prepare the food. Not only does the card say in English what I can and cannot eat and what to check on, but it also provides the information in Italian, just to be sure the chef understands!

The cards are also available for the following cuisines: Japanese, Chinese, Thai, Vietnamese, Indian, Greek, Mexican and French.

Thank you Triumph Dining for helping make my birthday a fabulous experience! I’ll let you know how the big night goes!

How to get your copy of the Triumph Dining Guide:
http://www.triumphdining.com

April 01, 2008

Gluten in Medications Education Seminar

Approximately 3 million Americans may have celiac disease, an autoimmune  disorder triggered by the consumption of gluten, a protein found in wheat, barley, and rye. The Food Allergen Labeling Consumer Protection Act of 2004, which requires packaged food labels to name all ingredients containing wheat and other common allergens, was a major landmark for patients with celiac disease and food allergens. Yet no similar requirement exists for medication labels. On Friday, April 11, the National Foundation for Celiac Awareness, the American Society of Health-System Pharmacists and Giant Pharmacy will host a Gluten in Medications event for pharmacists and pharmaceutical manufacturers.

The event will feature 1.5 hours continuing education, sponsored by ASHP, followed by a two-hour stakeholders meeting examining issues involved in labeling derivative sources of excipients in medications. The CE program will focus on educating pharmacists about celiac disease, the issues of gluten in medication, and how celiac disease may affect normal absorption of both prescription and non-prescription drugs.

Who should attend: Pharmacists who practice in hospitals and health systems, community pharmacies, chain and grocery stores pharmacies; as well as pharmaceutical company representatives and national pharmacy organizations; other medical professionals and dietitians.

Learning objectives: Upon completion of the CE program, attendees will be able to define celiac disease and its pathophysiology; articulate the suspected incidence of celiac disease; list signs and symptoms; describe potential sources of gluten in medication; identify reactions celiac patients may have from drugs; describe current United States and International guidelines for labeling; and discuss ways that pharmacists and pharmaceutical manufacturers can help patients with celiac disease use medicines safely.

Date: Friday April 11, 2008
2:00-3:30pm Continuing Education Session (ACPE Program #204-000-079-L04-P)
3:45:-5:45pm Stakeholders Discussion

Location:
Hyatt Regency Bethesda
7400 Wisconsin Ave
Bethesda, MD 20814
*Discounted hotel rates are available at the Hyatt Regency Bethesda. Please call the hotel directly and reference the NFCA Block to receive the discount.

PROGRAM:
2:00 p.m. Welcome

2:05 p.m. What is Celiac Disease?
Aline Charabaty, M.D., Gastroenterologist, Georgetown University Hospital 

2:20 p.m. Gluten in Medication & When is Gluten-Free Really Gluten-Free?
Robert Mangione, R.Ph., Ed.D., Dean of the St. Johns University College of Pharmacy

2:35 p.m. Parallels with the Food Allergen Labeling and Consumer Protection Act
Rhonda Kane, M.S., R.D., Consumer Safety Officer FDA Office of Nutrition, Labeling, and Dietary Supplements Center for Food Safety and Applied Nutrition

2:50 p.m. Excipients & Stakeholders
Gerry McEvoy, Pharm.D., ASHP Vice President, Drug Information

3:05 p.m. USP: Opportunities to Address Labeling Issues
Andrzej Wilk, Ph.D., Senior Scientist, United States Pharmacopeia

3:20 p.m. What You Can Do to Help Celiac Patients
Vanessa Maltin, Director of Programming & Communications, National Foundation for Celiac Awareness

To register for the Gluten in Medications Education Day, please visit:
http://www.celiaccentral.org/Other/Pharmacists_Education_Day/484/